The Connecticut Business & Industry Association, along with the National Organization for Rare Disease, announces Rare Disease Day on Wednesday, February 25 at the Legislative Office Building (Room 2E and 2nd Floor Atrium). The event starts at 10 a.m.
During this event, attendees will have the opportunity to meet and hear from members of the bioscience and biopharma industries, rare disease patients, medical professionals, and state legislators who support the rare disease community.
The event will include a 10-minute presentation by Paul Pescatello, chair of the CBIA Connecticut Bioscience Growth Council. The presentation will include a description of the specialized rare disease research and development expertise developed in Connecticut.
A rare disease is one that affects fewer than 200,000 Americans. There are nearly 7,000 such diseases affecting nearly 30 million Americans, according to the National Institutes of Health.
Participating organizations include: Alexion Pharmaceuticals, Boehringer Ingelheim, Friedreich's Ataxia Research Alliance, Leukemia and Lymphoma Society, National Tay Sachs & Allied Disease Association.
Media wishing to attend the event should contact Meaghan MacDonald (860.244.1957; email@example.com).
CBIA is Connecticut's largest business organization, with 10,000 member companies. For more information, please contact Meaghan MacDonald (860.244.1957; firstname.lastname@example.org) or visit the CBIA Newsroom.